The CCLA Overview
Our Mission Statement:To Offer support and education to Patients and families suffering from Liver Disease: Hep A,B,C, Wilson's Disease, Auto Immune Disease, Cirrhosis and others, and the treatments available. To Offer support and education to Patients and families dealing with liver transplantation. To Help educate the public regarding liver disease and the need for Organ Donors.
CCLA offers support and education to Patients and families suffering from Liver Disease: Hep A,B,C, Wilson’s Disease, Auto Immune Disease, Cirrhosis and others, and the treatments available, as well as support and education to Patients and families dealing with liver transplantation. We also help educate the public regarding liver disease and the need for Organ Donors
The proceeds, less expenses will benefit CCLA to help provide information, via mail and the internet, to patients and their families. Furthermore, funds will be allocated to patients, as available, to help with their uncovered medical expenses, specifically for testing, and medications.
We have over 300 members in metropolitan Charlotte area alone. Some are liver transplants as young as 3 years old, some are waiting for transplant surgery, or on new forms of treatment that may prevent their disease from advancing. Many of them are dealing with the issues related to Hep C.
There are no paid employees, or paid board members
Your donation is 100% tax deductible. Tax # ID available upon request
ACTION ALERT
URGE YOUR MEMBERS OF CONGRESS TO FUND HEPATITIS C PREVENTION IN THEIR APPROPRIATIONS
REQUEST LETTERS
Earlier this month, President Bush started the Fiscal Year 2008 appropriations process with the release of his budget proposal. The President's FY2008 budget flat funds the CDC Division of Viral Hepatitis (DVH). Silence on this issue will result in further cuts to an already small hepatitis C (HCV) allocation of $17.6 million at DVH. A small increase of $11 million can make a big difference.
In the next few weeks, all Senators and Representatives will write their “programmatic appropriations request letters,” which asks members of the Appropriations Subcommittees (who put together the federal funding legislation) to support funding for their priorities. These letters play a crucial role in educating key lawmakers about the importance of hepatitis-related public health programs.
The first thing you can do this year to fight for HCV funding is to contact your elected representatives and ask them to include funds for hepatitis C prevention programs in their programmatic appropriations request letter. Please take a few minutes to make these important phone calls! We can do this. Our request is reasonable. The infrastructure exists for the funds to be distributed and spent wisely by our state Adult Hepatitis Coordinators. We can make an impact, but only with action from you.
How you can help:
How: Contact your Senators and Representative today! We have just three weeks left to educate House Appropriators about the inadequate funding for hepatitis C programs. Whether you speak to this person live or leave a message, tell them:
“My name is ____________ and I live in City/State. I am calling to urge Representative/Senator________________ to include funding for hepatitis C in his/her Fiscal Year 2008 appropriations request letter. Below is sample language that your representatives can use when writing their request letters. OFFER TO EMAIL OR FAX IT TO THE STAFF PERSON.
When: Right now! Members of Congress need to hear from you by March 16 for
your U.S. Representatives and by April 13 for your two U.S. Senators.
We meet the 2nd Tuesday of every month, except in August.
Meetings are held at Carolinas Medical Center 1000 Blythe Boulevard
Charlotte NC unless otherwise indicated.
Meeting dates for 2007 :
Follow this link for a chance to chat with Physicians. www.hepatitisneighborhood.com
For people with Hepatitis C, a very helpful online support group can be found at Heppers Heaven. Here you can talk with others online about all the details pertaining to Hepatitis C, including interferon treatments, symptoms, latest news and the motivation to tackle and conquer HCV.
Carolinaliver.org is provided courtesy of member donations.
Copyright 2006 © Central Carolina Liver Association, Inc.
All content and works posted on this website are owned by the Central Carolina
Liver Association, Inc. All rights reserved.
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